Change of Direction

After weeks of continuous nausea, and with escalating liver enzyme counts, the doctors have taken Nancy off the Cytoxan and had another CT Scan performed on her liver.  Dr. Ward called late last night to tell us that the tumor has grown to 6.3cm x 3.4cm but he didn’t see any other material changes.  The way he phrased it was “nothing has fallen apart”.  Nancy will see  Dr. Koenig (considered the expert on Dermatomyositis) and confer on what course to take next.  There is another chemotherapy drug out there that treats both diseases, but it also affects the liver.  Since her liver counts are already too high, they will confer and see what will be the best route to take.   Nancy is feeling somewhat better in that her nausea usually only appears now around 6PM – instead of all day.  Her muscle (CK) counts are down to 75 (from 6500) so we are wondering why she still has the pain in her arms, neck, chest and tops of her thighs.  She remains to me to be a “miracle” and is an inspiration to us all.  Thank you again for all your concern and acts of kindness.  – Kevin